Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Monday, February 9, 2015

The Cancer Olympics or A Patient's Best Advocate

The first book I read this year (which was the last book I was reading at the end of last year), was titled The Cancer Olympics, by Robin McGee.  The author had cancer, but because of inadequate medical care, she was not diagnosed until it reached the late stages.  To add "insult to injury," her home province of Nova Scotia did not offer the best care chemotherapy for the type of cancer she had.  In the book, McGee chronicles her battles not only with her illness, but her early medical providers, and her provincial government.  How did it turn out?  Well, it is someone writing a memoir, so you can guess how it turned out - though not in the way you will think when you start the book.  I'll just say she gets three gold medals, but you'll have to read the book to find out how.

I mention McGee and her book not because it is uplifting and inspirational, which it is, but because of one of the themes of her book. That is: A patient must be his/her best advocate because - to be a little snarky - for some people in healthcare, it is just a job.  To a patient, it is his/her life, and ultimately, it is up to the patient to ensure that he/she is getting the best care possible.

It is shameful to hear when patients don't get proper medical care.  I was very lucky in his case.  Of course, I had some issues, but whoever I went to for help, whether it was a hospital staff member, or even my insurance company, I was met with co-operation and a true willingness to work with me to solve the issue.

Now, after almost three years of participating in online forums, talking to strangers on the street, etc, I've come to realize that, to put it nicely, many times, proper medical care slips through the crack.

A way to see things is like a project. The project is your health. Doctors, technicians, insurers (whether private or govt) are part of your team.  And you are the project leader.

Saturday, August 31, 2013

Inspirational Person #7: William Easton Riddell

William Easton Riddell was a boy who lived in Scotland over 130 years ago.  In 1882, he was 16 years old and playing soccer, when he hurt his leg.  His parents took him to see doctors, but the leg would not heal.

The parents were told William had cancer.  They did not tell William that until towards the end.

William knew he was terminal, and he did not become bitter, and did his best to keep his loved one's from feeling sorrow regarding his eventual death.

What seems naive, now in the 21st century, and hear it often with warrior culture, such as the samurai, or Spartans is the concept of looking forward to death and dying well.  But this concept is exemplified with William.  His mother wrote an account of these last months of his life.  I'm pretty sure I do not have the same strength as this young man did to face what he faced with the attitude he faced it with.

His story is chronicled in a book, published in 1886, titled, "A Bright Sunset: The Last Days of a Young Scottish Football Player."  I found the book to be touching and a tear-jerker.