Monday, October 2, 2017

Infection gone, improvement in legs

Update to my last post.  My infection seems to be gone, and I am feeling much more normal. My legs are a lot stronger, but not quite pre-infection strength.

Both my thoughts about my legs appear to have come true - that is 1.  that my leg strength would improve as I recovered from the infection, and 2. that my legs would not experience a spontaneous recovery.

That said, my legs have improved more rapidly than I thought. I probably no longer need a cane when I go out, but for now, that'll be a case by case basis.

When I first started experiencing this setback, I was angry and scared, I kept imagining life again using a wheelchair. The strange thing is,  "scared" isn't the right word because the thought of using a wheelchair again didn't feel so traumatic - I guess because I had gone through it before - I think it was more losing the recovery progress I had made over the past 5 years.

So, hopefully, I will continue improving again, even if slowly.

Tuesday, September 26, 2017

Muscle Spasms

It's appropriate I write this during sci awareness month. It started on July 23, when I developed a 103 fever, nausea, lack of appetite, extreme fatigue, and inability to pee. Turned out to be a urinary tract infection. My appetite never came back, my nausea never went away, and two weeks ago, I started experiencing extreme fatigue and dry heaves again. But this time, I also lost much strength in my legs, and lost much of the bladder control I had regained over the past 5 years. As a result, my recovery from sci has regressed back to where I was in 2013. I can go outdoors, but need a cane and cannot walk far. Still, I am much better than 2 weeks ago, when I could barely stand long enough to take a shower, and I have lost 17 lbs, which can be seen as a silver lining. I've learned two things out of all this. One, losing bodily functions can happen in a minute, but regaining them may take months, or two, no matter how much I recover, I'm some minor medical incident away from losing all that I've recovered. As Tony Stark would say, I'm still at my lowest ebb, but I guess my body knows that I'm still at a point that I need extra rest and sleep. The human body is an amazing thing, it can break down for no good reason, and yet know whats best at the same time.

Somewhere around this time, I think it was in-between the two attacks, I had a couple of episodes where my legs spasmed uncontrollably. I took a video of one of these occurrences. 

It's been a while since I posted, so here is a link to my book on my own recovery

Thursday, October 13, 2016

Guest Posted for Invacare's SCI blog, Roll Revolution

One of the necessary evils of being a writer is to engage in "shameless self-promotion." But, as someone who survived a spinal cord injury (SCI), and experienced a significant recovery, I've always been forward to sharing my story(ies).

Recently, Invacare, a leader in the medical equipment industry (especially pertinent for people with SCI) started a blog called Roll Revolution. It focuses on helping people deal with SCI.

And, they asked me to write a guest post for the blog. Needless to say, I was stoked. But I am more stoked that they decided to use the post I submitted.

Of course, this is a plug for the post I wrote, but I encourage people to check out the blog. It's still early, but the blog posts so far are really useful, and I think and hope it will mature int a great site.

Please check out my post called "Inspiration as a by product."

Saturday, June 25, 2016

Mr. Heavyfeet

Although I walk around pretty normally these days, it feels different. How different?  Being a big fan of the "old" comedy troupe, Kids in the Hall, here is a clip of how my legs feel on a normal day.

My Heavyfeet clip from Kids in the Hall

Tuesday, October 6, 2015

Toe Up to 10K wins Gold Medal in 2015 Reader's Favorite Book Awards

My book, Toe Up to 10K, won the Gold medal in the 2015 Reader's Favorite Book Awards in the category: Non-fiction - inspirational.

It's been a busy half year. I will try to start posting regularly again.

Wednesday, April 15, 2015

Motocross Star Pauly Plewa Spinal Cord Injured Set to Run 10K

Pauly Plewa was a motocross rider who injured his brain and spinal cord in an accident in March, 2012.  His chances of regaining any sensation below the chest was given at 2%.

Now, 3 years later, he is set to run 10K May 10th in the Wings For Life World run, which takes place in several cities at the same time.  If I remember correctly, it is a race that is organized by another motocross racer who also injured his spinal cord resulting from a racing accident.

Regular readers of this blog know that I set a goal of running a 10K myself, and it will also be three years for me in June, 2015.  I cannot yet "run" any distance longer than  the length of an intersection, but I think I can improve enough to do a 5K before the end of the year - who knows, maybe even a 10k.

In any event, this is truly an inspirational story reported by last week.

Pauly Plewa, SCI motocross rider set to run 10K

Tuesday, April 14, 2015

Q Fever - Another Scary Mystery illness

In 2012, I came down with viral meningitis.  Viral meningitis isn't supposed to be as bad as meningitis caused by other agents, but I ended up in ICU with kidney and lungs shutting down, and causing me to fall into a semi-conscious state. When I regained full consciousness (among other things), I found that I could not talk, breathe independently, nor move my legs.

I suffered damage to the spinal cord at the T4 level, and was told I may not walk again.  Fortunately, that prediction did not come true, but I still have issues related to walking, and other issues which go with spinal cord injury.

Doctors were never able to positively determine the cause of the spinal cord damage, but I'm sure it is at least indirectly related to the virus that caused the meningitis.

There are many agents out there, and sometimes it takes years to figure out what caused the illness.

Here is story, about a basketball coach who was diagnosed with Q Fever, something that can be transmitted just by breathing the air around a birthing cow. How scary is that?

This story is from

Basketball Coach's Mysterious Illness is Q Fever