Featured on Transverse Myelitis Association Blog

I submitted a guest blog post to the Transverse Myelitis Blog and they published it yesterday. Hooray!  I am very grateful they allowed me to share my story.

Here is the link:  My story

To follow up on yesterday's post.  Here is a YouTube video with the focus on children who are afflicted with TM. 

video

Transverse Myelitis Association

I copied and pasted their mission statement below from their website.

I did some more research on this condition, and it appears to be more rare than Guillain-Barre Syndrome.  About 4 in a million get afflicted with this each year.  Also, about 15 - 35 percent of transverse myelitis will eventually be diagnosed with MS.

Here is the link to the Transverse Myelitis Association

Here is there mission statement (copied from website)

To support and advocate for individuals and their families diagnosed with rare neuroimmunologic disorders of the central nervous system

To promote awareness and to empower patients, families, clinicians and scientists through education programs and publications

To advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research

OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH THESE RARE NEUROIMMUNOLOGIC DISORDERS